LAUNCHING THIS FALL
A Global Campaign to make rare disease visible, fundable, and solvable
YOU CAN’T CURE WHAT YOU CAN’T SEE
SEE RARE is the cultural movement rare disease has never had. We combine visibility with catalytic capital to close the gap between scientific possibility and medical reality. The mission: more treatments to more people, faster.
Co-founded by Nicole Boice, founder of Global Genes and RARE-X, and Erin Finucane, rare mom and global social impact strategist.
THE MOMENT IS NOW
10,000+
NUMBER OF RARE DISEASES
30M
RARE PATIENTS IN U.S.
400M
RARE PATIENTS wORLDWIDE
95%
hAVE NO TREATMENT
50%
RARE PATIENTS ARE CHILDREN
The science is ready. The tools exist. There has never been a cultural moment for rare disease — until now.
OUR APPROACH
Cultural Visibility
Bold campaigns, powerful stories, and iconic moments that bring rare disease into the mainstream — shifting public awareness into sustained attention.
Catalytic Capital
Funding deployed strategically to accelerate the treatments, diagnostics, and infrastructure rare patients need.
Scientific Partnerships
SEE RARE mobilizes the scientific community around a bold innovation agenda — accelerating science, funding, and field-wide momentum toward breakthroughs rare disease demands.